Channel Title: American Brain Tumor Association Channel Description: Founded in 1973, the American Brain Tumor Association (ABTA) was the first national nonprofit organization dedicated solely to brain tumor research. The ABTA has since expanded our mission and now provides comprehensive resources to support the complex needs of brain tumor patients and caregivers, across all ages and tumor types, as well as the critical funding of research in the pursuit of breakthroughs in brain tumor diagnoses, treatments and care. To learn more, contact our CareLine at (800) 886-2282 (ABTA) or info@abta.org. <video> ABTA 2024 National Conference Day 2 Opening Ceremony: Joel A. Gingras Jr. Award Presentation Description: Welcome Join the Co-Chairs for a short overview of what to expect for day two! Co-Chairs: Roy Strowd, III, MD, MEd, MS, Wake Forest University School of Medicine Marta Penas-Prado, MD, MSc, Center for Cancer Research, National Cancer Institute, National Institutes of Health Joel A. Gingras Jr. Award Join us in recognizing Kathy Oliver as the 13th recipient of the Joel A. Gingras Jr. Award! Learn how Kathy has made significant contributions to the ABTA’s mission through philanthropy, advocacy, research, and patient care. Don and Gail Segal, Honorary Board Members, American Brain Tumor Association Johnathan Gingras, President, Joel A. Gingras, Jr. Memorial Foundation Recipient: Kathy Oliver, Chair and a Founding Co-Director of the International Brain Tumour Alliance (IBTA) </video> <video> Immunotherapy and Brain Tumors Description: Immunotherapy has revolutionized the treatment of cancer, but there have been limitations in adapting this treatment for brain tumors. Join this webinar to take a comprehensive look at immunotherapy as an option for brain tumor treatment and ongoing research on this front. Webinar Overview: • Understand what immunotherapy is and how it can impact brain tumor treatment • Learn about the advancements of immunotherapy and how these are being addressed in ongoing research and clinical trials • Recognize the potential benefits and challenges of immunotherapy Presented by: Peter Fecci, MD, PhD Duke University For more information, resources or support, visit the abta.org, call (800) 886-2282 or email info@abta.org. </video> <video> Navigating the Stages of Brain Tumor Care: Treating My Tumor Description: What are the key questions to ask your doctor when you are receiving active treatment for a brain and spine tumor? This session will cover critical topics for patients who are newly diagnosed or in an active treatment phase. Download the presentation slides here: https://bit.ly/NC24Treatment What You’ll Learn: • Common questions to ask and factors that may affect treatment decisions • Why to consider a clinical trial • The importance of seeking a second opinion Speaker: Ashley Ghiaseddin, MD, FAAN, University of Florida Health, Gainesville </video> <video> ABTA 2024 National Conference: Opening Ceremony & Juliana Schafer Spirit of Hope Award Presentation Description: Welcome to the ABTA 2024 National Conference! Learn about the vision behind this dynamic program and why there is more hope than ever for brain tumor patients, their families, and the people who care for them. Ralph DeVitto, President & CEO, American Brain Tumor Association Mindy Freund, MSN, RN, CCRC, Director of Patient Services, American Brain Tumor Association Co-Chairs: Roy Strowd, III, MD, MEd, MS, Wake Forest University School of Medicine Marta Penas-Prado, MD, MSc, Center for Cancer Research, National Cancer Institute, National Institutes of Health ABTA Juliana Schafer Spirit of Hope Award Join us in congratulating the recipient of this award, recognizing and honoring this individual, who has generously donated their time and talents to further the mission of the ABTA through their volunteer efforts. Ralph DeVitto, President & CEO, American Brain Tumor Association Kelly Sitkin, Chief Development Officer, American Brain Tumor Association Charles (Chad) Schafer, JD, Juliana Sanchez Schafer’s husband; Board Member, Development and Mission Committee, American Brain Tumor Association </video> <video> Thriving with a Brain Tumor: Exercise and Nutrition Description: Adopting healthy lifestyle changes can help patients improve their quality of life. Join this active and engaging session to discuss lifestyle and dietary therapies to promote physical and mental wellbeing. Download the presentation slides here: https://bit.ly/NC24Exercise What You’ll Learn: • The importance of diet, lifestyle, and mental health in managing brain tumor symptoms and side effects. • Evidence-based diet recommendations for brain tumor patients. • Tips on incorporating diet and lifestyle changes to improve physical and mental wellbeing. Speakers: • L.J. Amaral MS, RD, CSO, Cedars Sinai • Elizabeth Bohorfoush, PT, DPT, The University of Alabama at Birmingham </video> <video> How Does the American Brain Tumor Association Support You? Description: Anaplastic Astrocytoma Survivor Molly Marco talks about how the American Brain Tumor Association helps her find meaning and purpose. </video> <video> Burning Questions to Ask Your Doctor: How Do I Understand My Tumor Report? Description: Genetic testing has become extremely common. Tumor reports now include information about the genes and genetic changes present in the tumor. These advances help to more accurately diagnose brain and spine tumors and inform treatment decisions. Join this session to learn how to understand and interpret your tumor report. Download the presentation slides here: https://bit.ly/NC24Pathology What You’ll Learn: • How a neuropathology report is organized and what the different sections mean • The most frequent genetic alterations, what they mean, and how they are detected • How an accurate diagnosis informs treatment decisions Speaker: Shakti Ramkissoon, MD, PhD, Wake Forest Comprehensive Cancer Center </video> <video> Navigating the Stages of Brain Tumor Care: Redefining Survivorship Description: Explore what it means to be a survivor and discuss common questions about what happens after completing treatment or during maintenance phase. Download the presentation slides here: https://bit.ly/NC24Survivorship What You’ll Learn: • Common misconceptions about survivorship and how to redefine what it means to be a survivor • How to communicate to your doctor about what is important to you as a patient or caregiver • Effective strategies for adapting to life after diagnosis Speaker: Soma Sengupta, MD, PhD, MBA, The University of North Carolina at Chapel Hill </video> <video> Navigating the Stages of Brain Tumor Care: What If My Tumor Comes Back? Description: Anticipation of recurrence is a common concern among brain tumor patients. This session will address the concerns and uncertainties of a recurrence, what options are available, and guidance on how to prepare and respond effectively. Download the presentation slides here: https://bit.ly/NC24Recur What You’ll Learn: • What pseudoprogression is and how it might affect your treatment • The role of surgery, clinical trials, and second opinions when treating a recurrence • Managing scanxiety • How to make informed decisions for your care pathway Speaker: Ashley Aaroe, MD, The University of Texas, MD Anderson Cancer Center </video> <video> 2025 ABTA Breakthrough for Brain Tumors 5k Description: </video> <video> 2025 ABTA Breakthrough for Brain Tumors 5k: Find Your City Description: </video> <video> Thriving with a Brain Tumor: Fertility and Family Planning Description: For many patients and their loved ones, the diagnosis and treatment of a brain and spine tumor can have a profound impact on their ability to have a family. Counseling and careful planning are essential in these circumstances. Discuss the challenges of family planning with a brain tumor diagnosis and resources to help. Download the presentation slides here: https://bit.ly/NC24Fertility What You’ll Learn: • How brain and spine tumors and treatments can impact fertility and family planning • What fertility preservation options are available. • The financial costs associated with family planning and how to navigate them. Speaker: Douglas Fair, MD, MS, University of Utah </video> <video> How Metastatic Brain Tumors Affect Your Kidney Cancer Care Description: This webinar, presented in partnership with the Kidney Cancer Association, will provide a deeper dive into the brain metastases experience for kidney cancer, exploring risks, progression, signs & symptoms, treatment options, and management. Webinar Overview: -Understand how kidney cancer progresses and metastasizes to the brain -Learn about the risk factors, signs & symptoms, treatment options, and management of brain metastases in kidney cancer -Recognize the members of your care team, their role, and the importance of a tumor board Panelists: Elshad Hasanov, MD, PhD Assistant Professor of Internal Medicine/Medical Oncology Ohio State University Joseph Bovi, MD, FACR Radiation Oncologist Professor ThedaCare Toni Cao, MD Neuro-oncology Fellow Stanford Medicine Chetan Bettegowda, MD, PhD Professor, Department of Neurosurgery John Hopkins University School of Medicine For more information, resources or support, visit the abta.org, call (800) 886-2282 or email info@abta.org. </video> <video> ABTA 2024 National Conference Closing Remarks Description: Gather together one last time for closing remarks and prize giveaways! Ralph DeVitto, President & CEO, American Brain Tumor Association Co-Chairs: Roy Strowd, III, MD, MEd, MS, Wake Forest University School of Medicine Marta Penas-Prado, MD, MSc, Center for Cancer Research, National Cancer Institute, National Institutes of Health </video> <video> Thriving with a Brain Tumor: Nurturing Caregivers’ Well being Description: Caregivers are a lifeline for their loved one with a brain or spine tumor. This important role comes without a manual and can be physically and mentally stressful. Discover why being kind to yourself is key to being a great caregiver. Gain tips and tricks to help you stay strong, no matter what caregiving throws your way. Download the presentation slides here: https://bit.ly/NC24Caregivers What You’ll Learn: • The role and challenges of caring for individuals with brain and spine tumors • Self-care strategies to extend compassion to yourself to provide quality care • Resilience and adaptive skills Speaker: Kelcie D. Willis, PhD, Massachusetts General Hospital </video>

Contacts and Links

Description

Founded in 1973, the American Brain Tumor Association (ABTA) was the first national nonprofit organization dedicated solely to brain tumor research. The ABTA has since expanded our mission and now provides comprehensive resources to support the complex needs of brain tumor patients and caregivers, across all ages and tumor types, as well as the critical funding of research in the pursuit of breakthroughs in brain tumor diagnoses, treatments and care.

To learn more, contact our CareLine at (800) 886-2282 (ABTA) or info@abta.org.

Videos from channel