Channel Title: National Axial Spondyloarthritis Society Channel Description: The National Axial Spondyloarthritis Society is a charity dedicated to providing information and support to people living with axial spondyloarthritis, an inflammatory arthritis of the spine. For more information visit www.nass.co.uk <video> Rheum for improvement one off special - The use of MRI in the diagnosis of axial SpA Description: The use of MRI in the diagnosis of axial SpA Hosts Lucy Davies and Professor Hasan Tahir meet with Dr Timothy Bray, Consultant Radiologist at University College London Hospitals NHS Foundation Trust and Professor Alex Bennett, Consultant Rheumatologist at the Defence Medical Rehabilitation Centre, Stanford Hall. Alex and Tim discuss the role of MRI including when it should be used, who should request it, the correct approach (sequences / protocols) and diagnostic criteria and how closer working between radiology and rheumatology can help reduce the delay to diagnosis in axial SpA. #MRI #axSpA #axialSpA #imaging #radiology #MSKRadiology #msk #ankylosingspondylitis #axialspondyloarthritis #ActOnAxialSpA </video> <video> Physical activity and axial SpA - update on research with Dr Matthew Roberts, Research Scientist Description: Visit our Facebook page or YouTube channel at 6pm on Wednesday 24 July to get an update on the latest research with Dr Matthew Roberts, Research Scientist. If you can't join us live, send your questions to zoe@nass.co.uk and catch up on the recording afterwards </video> <video> Getting the most out of your axial SpA medical appointments - live webinar Description: Join Zoë at 6pm on Weds 26 June to get tips on getting the most out of medical appointments for your axial SpA </video> <video> Physical activity and axial SpA - update on the latest research with Dr Matt Roberts Description: Dr Matthew Roberts, Research Scientist, delves into the research around physical activity and axial SpA. Watch to understand why it helps axial SpA symptoms, to know how much activity is right, and how to find the movements that work for you. Enjoying this video? Subscribe! → https://www.youtube.com/user/NASSCentral We are the National Axial Spondyloarthritis Society (NASS) and we are here to transform the diagnosis and care of people living with axial SpA. Axial SpA works silently. We don’t. FOLLOW US ↓ • Facebook https://www.facebook.com/nationalaxialspondyloarthritissociety • Twitter https://twitter.com/NASSexercise • Instagram https://www.instagram.com/nass_exercise/ JOIN OUR COMMUNITY ↓ • Receive our monthly e-newsletter https://nass.co.uk/newsletter/ • Become a member https://nass.co.uk/get-involved/become-a-member/ USEFUL RESOURCES ↓ • Find your local NASS Branch https://nass.co.uk/managing-my-as/in-your-area/ • Visit Your SpAce and join our community https://nass.co.uk/about-as/your-space • Contact the NASS Helpline for support https://nass.co.uk/contact-us/ MY AS, MY LIFE ↓ • Learn more about managing your axial spondyloarthritis https://nass.co.uk/managing-my-as/my-as-my-life/ This video was originally recorded live on 24 July 2024. #AxialSpondyloarthritis #AnkylosingSpondylitis </video> <video> Getting the most out of medical appointments for your axial SpA Description: With limited time in medical appointments, it's important to get the most out of them. Zoë shares advice on preparing, making use of the time in appointments, and ways to reflect afterwards. How do you get the most out of your medical appointments? Let us know in the comments 👇 Enjoying this video? Subscribe! → https://www.youtube.com/user/NASSCentral We are the National Axial Spondyloarthritis Society (NASS) and we are here to transform the diagnosis and care of people living with axial SpA. Axial SpA works silently. We don’t. FOLLOW US ↓ • Facebook https://www.facebook.com/nationalaxialspondyloarthritissociety • Twitter https://twitter.com/NASSexercise • Instagram https://www.instagram.com/nass_exercise/ JOIN OUR COMMUNITY ↓ • Receive our monthly e-newsletter https://nass.co.uk/newsletter/ • Become a member https://nass.co.uk/get-involved/become-a-member/ • Find your local NASS Branch https://nass.co.uk/managing-my-as/in-your-area/ USEFUL RESOURCES ↓ • Download the slides https://nass.co.uk/wp-content/uploads/2024/06/Getting-the-most-out-of-appointments.pdf • Visit Your SpAce and join our community https://nass.co.uk/about-as/your-space • Contact the NASS Helpline for support https://nass.co.uk/contact-us/ MY AS, MY LIFE ↓ • Learn more about managing your axial spondyloarthritis https://nass.co.uk/managing-my-as/my-as-my-life/ This video was originally recorded live on https://www.facebook.com/nationalaxialspondyloarthritissociety on 26 June 2024 #AxialSpondyloarthritis #AnkylosingSpondylitis </video> <video> Rheum for improvement one off special - axial SpA and IBD Description: 'Earlier recognition of axial SpA in patients with IBD - how can we achieve this' Hosts Lucy Davies and Professor Hasan Tahir meet with Dr Christian Selinger, Consultant Gastroenterologist at Leeds Teaching Hospitals NHS Trust and Professor Raj Sengupta, Consultant Rheumatologist at Royal National Hospital for Rheumatic Diseases, Royal United Hospitals Bath. Christian and Raj discuss the links between Inflammatory Bowel Disease (IBD) and axial SpA, how gastroenterologists can recognise axial Spa in their patients and how closer working between gastroenterology and rheumatology can help reduce the delay to diagnosis in axial SpA. #IBD #axSpA #axialSpA #crohnsdisease #crohnsandcolitis #colitis #ulcerativecolitis #ankylosingspondylitis #axialspondyloarthritis #ActOnAxialSpA #as #WorldIBDDay #IBDhasnoborders </video> <video> Seated Somatic Movement class for people with axial SpA Description: Try a seated Somatic Movement class with Ian Young, Somatic Movement Coach. For more information about Ian and his classes, visit https://www.ianyoungsomatics.com/ If you're unsure if this class is suitable for you, please check with a healthcare professional before trying the movements. Enjoying this video? Subscribe! → https://www.youtube.com/user/NASSCentral We are the National Axial Spondyloarthritis Society (NASS) and we are here to transform the diagnosis and care of people living with axial SpA. Axial SpA works silently. We don’t. FOLLOW US ↓ • Facebook https://www.facebook.com/nationalaxialspondyloarthritissociety • Twitter https://twitter.com/NASSexercise • Instagram https://www.instagram.com/nass_exercise/ JOIN OUR COMMUNITY ↓ • Receive our monthly e-newsletter https://nass.co.uk/newsletter/ • Become a member https://nass.co.uk/get-involved/become-a-member/ • Find your local NASS Branch https://nass.co.uk/managing-my-as/in-your-area/ USEFUL RESOURCES ↓ • Visit Your SpAce and join our community https://nass.co.uk/about-as/your-space • Contact the NASS Helpline for support https://nass.co.uk/contact-us/ MY AS, MY LIFE ↓ • Learn more about managing your axial spondyloarthritis https://nass.co.uk/managing-my-as/my-as-my-life/ This video was originally recorded live on 11 September 2024 #AxialSpondyloarthritis #AnkylosingSpondylitis </video> <video> "They couldn't see what was going on underneath" - A story of how Lizzie found hope. Description: At 38, Lizzie was told that her chronic pain was "probably just wear and tear" until she was finally diagnosed with axial SpA. She felt misunderstood and alone until she spotted NASS posters in her rheumatology department and picked up some NASS guidebooks. These led her to our helpline, where she found Garry - the first person who truly understood her invisible daily challenges without her having to explain. He helped her access the disability benefits she needed. Thanks to supporters like you, we can be there for people affected by axial SpA for every step of the way - from that first guidebook to the vital helpline call. Right now, nearly a fifth of people receive no support at all when diagnosed. Your donation can change this. Donate today: https://nass-winter-appeal-2024.raiselysite.com/?utm_source=youtube&utm_medium=organic_video&utm_campaign=winter2024&utm_content=lizzie1 We urgently need your help to ensure that we can reach the growing number of people with axial SpA who need support from NASS. #AS #axialspondyloarthritis #ankylosingspondylitis #NASS #axialspa #fundraising #donate #winterappeal #story </video> <video> "NASS is a beam of knowledge and connection with other people" – Jamie’s story Description: Your donation today to the NASS Winter Appeal can help give someone like Jamie the chance to say, "What can I do?" instead of "My life's over." Click the link to make your donation today: https://nass-winter-appeal-2024.raiselysite.com/?utm_source=YouTube&utm_medium=organic_video&utm_campaign=winter2024&utm_content=jamie More people than ever are feeling isolated living with axial SpA. Last year, the NASS Helpline alone supported 5,000 people. This year, we expect to help an extra 500 people. Nearly a fifth of people like Jamie receive no support at all when they're diagnosed. Your donation can help ensure no one like Jamie has to face living alone with axial SpA this winter. Thank you. With thanks to Tom Aldous for recording the film. Did any of Jamie’s experiences resonate with you? Let us know in the comments 👇 JOIN OUR COMMUNITY ↓ Come to our free monthly Your SpAce meetups: https://www.eventbrite.com/cc/your-sp... Receive our monthly e-newsletter: https://nass.co.uk/newsletter/ Become a member: https://nass.co.uk/get-involved/becom... Find your local NASS Branch: https://nass.co.uk/managing-my-as/in-... FOLLOW US ↓ Facebook / https://www.facebook.com/NationalAxialSpondyloarthritisSociety/ Twitter / https://x.com/NASSexercise Instagram / https://www.instagram.com/nass_exercise/ We are the National Axial Spondyloarthritis Society (NASS) and we are here to transform the diagnosis and care of people living with axial SpA. Axial SpA works silently. We don’t. #AS #axialspondyloarthritis #ankylosingspondylitis #NASS #axialspa #fundraising #donate #winterappeal #story </video> <video> Understanding Patient Initiated Follow-Up appointments (PIFU) Description: Patient Initiated Follow-Up appointments (PIFU) are being used more and more by rheumatology departments. It means that, rather than having a routine appointment every year, you decide when you'd like an appointment. Find out more in this video. Enjoying this video? Subscribe! → https://www.youtube.com/user/NASSCentral We are the National Axial Spondyloarthritis Society (NASS) and we are here to transform the diagnosis and care of people living with axial SpA. Axial SpA works silently. We don’t. FOLLOW US ↓ • Facebook https://www.facebook.com/nationalaxialspondyloarthritissociety • Twitter https://twitter.com/NASSexercise • Instagram https://www.instagram.com/nass_exercise/ JOIN OUR COMMUNITY ↓ • Receive our monthly e-newsletter https://nass.co.uk/newsletter/ • Become a member https://nass.co.uk/get-involved/become-a-member/ • Find your local NASS Branch https://nass.co.uk/managing-my-as/in-your-area/ USEFUL RESOURCES ↓ • Contact the NASS Helpline for support https://nass.co.uk/contact-us/ #AxialSpondyloarthritis #AnkylosingSpondylitis #NHSappointments #PIFU </video> <video> "I'm not alone when I've got NASS" - Geoff's Story Description: Living with axial SpA can feel extremely lonely. Not knowing what to do or who to turn to for help. You can help. Please donate today: https://nass-winter-appeal-2024.raiselysite.com/?utm_source=YouTube&utm_medium=organic_video&utm_campaign=winter2024&utm_content=geoff Your donation could be life-changing: £10 can help connect one person to the NASS Helpline, offering empathy, support and advice when they most need it. £25 can help up to 40 people receive at least one guidebook from their rheumatologist to help them manage their symptoms between hospital appointments. £50 can help one person apply for disability benefits with expert advice and support. £250 can help people with axial SpA meet others going through similar experiences at a Your SpAce meetup - and discover they're not alone with the condition. #AS #axialspondyloarthritis #ankylosingspondylitis #NASS #axialspa #fundraising #donate #winterappeal #story </video> <video> Creating a Gold Standard in axial SpA treatment and care Description: Learn more about our exciting project to develop a Gold Standard in treatment and care of axial SpA. Amy and Mel, two of our steering group members with lived experience, share what we mean by a Gold Standard, why they decided to get involved, and why your views are vital. Learn more here: https://nass.co.uk/news/goldstandard/ Enjoying this video? Subscribe! → https://www.youtube.com/user/NASSCentral We are the National Axial Spondyloarthritis Society (NASS) and we are here to transform the diagnosis and care of people living with axial SpA. Axial SpA works silently. We don’t. FOLLOW US ↓ • Facebook https://www.facebook.com/nationalaxialspondyloarthritissociety • Twitter https://twitter.com/NASSexercise • Instagram https://www.instagram.com/nass_exercise/ • LinkedIn https://linkedin.com/company/national-axial-spondyloarthritis-society JOIN OUR COMMUNITY ↓ • Receive our monthly e-newsletter https://nass.co.uk/newsletter/ • Become a member https://nass.co.uk/get-involved/become-a-member/ • Join a Your SpAce online meetup https://bit.ly/3WbPCH4 • Find your local NASS Branch https://nass.co.uk/managing-my-as/in-your-area/ USEFUL RESOURCES ↓ • Contact the NASS Helpline for support https://nass.co.uk/contact-us/ #AxialSpondyloarthritis #AnkylosingSpondylitis </video> <video> How you can help NASS achieve a Gold Standard in axial SpA treatment and care Description: Join us live on 16th July at 6pm to learn more about our exciting project to develop a Gold Standard in Treatment and Care of axial SpA. Amy and Mel, two of our steering group members with lived experience, will share what we mean by a Gold Standard, why they decided to get involved, and why your views are vital. The webinar will be live-streamed across Facebook, YouTube, and Instagram. If you can't join live, send your questions in advance to zoe@nass.co.uk and catch up on the recording afterwards. </video> <video> Somatic Movement class with Ian Young Description: Try a seated Somatic Movement class with Ian Young, Somatic Movement Coach. For more information about Ian and his classes, visit https://www.ianyoungsomatics.com/ If you're unsure if this class is suitable for you, please check with a healthcare professional before trying the movements. </video> <video> Marcus’ 200 Mile Cycling Challenge for NASS Description: Marcus Weedon, who has axial SpA, will be cycling 200 miles across Norfolk in September to raise vital funds for NASS. NASS caught up with Marcus to find out more about his journey with axial SpA from pub owner to running club organiser, and why he’s decided to take on this extraordinary challenge. #AS #axialspa #axialspondyloarthritis #ankylosingspondylitis #NASS </video>

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The National Axial Spondyloarthritis Society is a charity dedicated to providing information and support to people living with axial spondyloarthritis, an inflammatory arthritis of the spine. For more information visit www.nass.co.uk

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