| Subscribers | 22,200 |
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| Views | 8,213,128 |
| Videos | 297 |
| Created | Oct 2013 (11 years old) |
| Topics | Music Health Lifestyle_(sociology) |
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Description
In this channel I upload videos and information about my daughter Victoria.
She has a very rare genetic syndrome called Proline dehydrogenase deficiency. The mutation is located on chromosome 22 in the PRODH gene. In itself, it leads to epilepsy, intellectual deficits, ADHD and features of the autistic spectrum.
In she has and brain malfunction called Taylor's cortical dysplasia.Victoria was born at the end of the 8th month and was on auxiliary breathing and a hot plate.When she was 2 months old began to have various episodes of body curvature or sudden stiffness.So at the moment she is 12 and a half years old, but intellectually corresponds to a 4-year-old child.
Over the years, it went through a stiffness of the body, then there were absences, complex partial, atonic and last year complex partial with secondary generalization passing into statuses.
She is currently on 4 medications - Depakine, Lamictal, Topamax and Clonazepam + CBD.
https://youtu.be/hScvBuQJ2bg